As I've mentioned before, there's a website for Doose syndrome, or myoclonic astatic epilespy (MAE). I have it listed on Austin's Epilespy Links on the sidebar. I'm a member of their support group, and they put Austin's info on their site! Go to http://www.doosesyndrome.com./ourchildren.htm and click on Austin. Below his summary is a link to a story of his journey. FYI, I do know how to spell pediatrician. They're from the UK and I guess they must spell it paediatrician. :)